A Piece Of Me

Have you ever been in a situation where you are trying to tell someone something but they don’t believe you? It’s awful isn’t it. I really do know how you feel. In my case it was medical professionals, doctors and A&E staff that didn’t listen to me. I had issues starting in Nov 2017. It took until March 2018 for someone to believe me. When I was first hospitalised in the November, they told me I had a Pelvic inflammation disease, I was told there was no cure and due to the disease I would get repeated infections. I walked away thinking I knew what was wrong with me.

Between then and March I visited the Doctors and A&E multiple times. Each time I was barely looked at and sent on my way with another course of antibiotics. It was at the point where I was getting new ones every 7-10 days. Nothing seemed to be working. I was getting worse. I had stopped eating, constantly felt sick and was vomiting, I lost 3 stone, kept shaking uncontrollably and I had so much pain.

I told them all that something was wrong with me, I knew something was very seriously wrong. They wouldn’t listen, they kept telling me that perhaps I had an addiction to pain medication as I was on Tramadol at this point which didn’t shift the pain. They told me I was imagining it, that I should perhaps seek additional help to deal with my issues.

I felt like I was going crazy, I started to question myself. They are the professionals so they know what they are doing right? I saw a new doctor in March who I sat and spoke to about it all, I cried at her, told her how others had made me feel and she listened. After I was finished she examined me and took 15 minutes to read through all my notes and hospital visits and then turned me and said “I don’t think you have this womb disease” she sent me immediately to the hospital armed with a strongly worded letter. She rang a department and told them to expect me, that she wanted through tests for everything, especially things such as Lupus, Crohns and anything rare.

It was that appointment that changed everything, she saved my life. If I hadn’t have seen her I wouldn’t have had the treatments and surgeries I needed and I would have died. The consultant that saw me at the hospital when they told me what was wrong said I was days away from dying.
This post isn’t about what happened after that, I’ve already discussed that in previous posts. This post is about that time between November and March where I felt I had lost my sanity and had every single part of my self belief taken away.

It is not acceptable for people to make us feel this way. We trust these professionals with our lives, we don’t disbelieve them because they have gone through years of training and experiences to help us.

I have no problem discussing my diagnosis, surgeries, time in hospital, how I have coped with recovering, how it’s changed my life, non of it but I do have issues with the time before hospital.

I can’t talk about it without crying, without anxiety rising up with it’s nasty claws to take a piece of me back with it. I am a rational person, I would like to think I am pretty confident. I know that the same situation is unlikely to occur again but I cannot get past it.
Those few months when I was deathly sick took something from me. It wasn’t even the illness that took it, it was those people I put my faith and trust in, those people who made me feel like I was nothing, I wasn’t to be believed, those who had stamped HYPOCHONDRIAC all over my head.

I am writing this post because I need to do something pro-active to help myself, to enable my thoughts to get past this. A very good friend of mine suggested that I blog about it, not just to help myself but to also show those who have been through similar that they aren’t as alone as they feel they are, or have been. I am lucky that I have people who I love and trust dearly who allow me the space and time to cry, rant, swear and get angry.

That’s the other side of this coin, the anger. I go from being completely sad over the way I have been treated to angry. Angry that I wasn’t believed, angry that I almost lost my life and left behind children, a partner, my family, angry that I was fed all these tablets that ultimately made me more sick more ill and I am angry that my 4 yr old daughter cries whenever I have a doctor or hospital appointment because she thinks I’m not going to come home again for weeks like last time.

It should not be this way, we, as people deserve to be listened too. It is our right to be heard. We should not be silenced because we are told we aren’t qualified to know better.
As masters of our own bodies and minds we should have that control.
For those of you who have suffered a similar way, or are going through something like this, please, force them to listen to you, do not let them make you feel the way I do. You deserve better.

Thanks for reading.

Emma-Louise x

5 thoughts on “A Piece Of Me

  1. Reading stories like yours makes me realise how incredibly lucky I have been with all of my doctors. I am so sorry that you and your family had to go through this. I hope that sharing your story helps you and others. xx

    1. OM what can I say… of course we as people are programmed into believing that medical professionals are right, know what they are doing, know what to expect…. WRONG.. I work in the NHS and even though I work with extremely highly qualified Consultants and Nurse specials they can and do sometimes get it wrong. ..

      We know our own bodies… it must have been so so hard for you to be allowed to feel that you was exsagerating, imagining it all.

      I really hope that sharing this has made you feel slightly “lighter” and that you are on the road of recovery.

      Being a “mum” a “nan” I can’t even bring myself to imagine what you was feeling like just thinking about how close you came to leaving your loved ones.

      I personally would most definitely be putting in a complaint and be expecting nothing less than answers.

      Sending you lots of love 💕 Di

  2. I have been in a similar situation years ago and went from not being believed for years to a phone call saying chemo is booked in a couple of days. Not being believed and lack of trust impacts a patient for years after and always there.
    Glad and relieved you found that person who changed your life.

  3. I was told that I had the flu by 4 doctors. It was only when my fever broke 104 and I started seeing horses run through my lounge at home they rushed me into hospital. I had meningitis. This led to 7 strokes, being in a wheelchair and left with both M.E. and severe Guillain Barre Syndrome. They got it wrong and my body has never recovered….but…you know me and you know what I do. I won’t let it win and I won’t let the doctors mistakes mess up my brain. You have totally got this and now you know what is going on, now you can fight 🙂 And my lovely, fight you with you. And when you do, I’ll be right by your side 🙂

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