I’m back today with an update on my health. Yesterday was a big day for me. I had an appointment with my consultant to finally get the results from the biopsy that was taken during surgery on the 20th April.
It turns out I have Crohns Disease. This was a much better result than what it could have been. However, it is still very much life altering. There is no cure for Crohns and it is a very unpredictable chronic illness.
The consultant is hopeful that with the right preventive medication that I should be able to manage things well. I have been referred to a specialist and IBD nurse to get everything started.
I was happy that he said he wants me to start swimming in two weeks to build up my strength and mobility. I love swimming so that works really well for me.
Today I plan to start setting up a health bullet journal as I feel it will be really helpful in tracking all the appointments, symptoms and food issues as well as holding information and such.
I am not going to lie, I’m somewhat scared of going forward, Crohns is new to me and I’ve got a lot to learn about my body and with it been unpredictable it means I know I will have bad days and weeks ahead of me but I am grateful to finally have some answers and support.
The last few months have been a massive struggle and things have been hard. I always thought It was rough before but it was nothing compared to this.
I’ve had an iron infusion, 4 blood transfusions, over 4 weeks in hospital, a minor operation, major operation and 4 infections since leaving hospital but I am getting there. I have another surgery to face within the next few months to get the stent removed from my kidney. I’m trying to be positive now and start planning my new life.
There are photos below from my time in hospital so contain transfusions and neck cannula etc and displaying my weight loss (total of 8 stone, 3 of which was due to my illness over the last 3 months).
Thank you for reading and sticking with me during this time. Its very much appriciated.